Links to Related Topics
There are many websites with information on twins, research involving
twins, and multiple birth organisations. We have listed some sites below that
you may find interesting. Please note that ISTS is not responsible for the
content of the sites listed and provides these addresses for your information
and interest only. Due to the large number of sites, it is impossible to
closely monitor all of them. If you feel that something listed on any site is
inappropriate or if you would like to have a site considered for addition,
please notify us by emailing us at firstname.lastname@example.org.
Please click on the links below:
of Multiple Birth Organizations (ICOMBO)
ICOMBO is a
working group of the International Society for Twin Studies (ISTS).
Twin Registers and Research
Flanders Prospective Twin Survey
National Twin Program (CNTP)
Observational Study of Adult Twins (GOSAT) and the Bielefeld Longitudinal Study
of Adult Twins (BiLSAT)
of Italian Twin Athletes (RITA)
Register of Rome (TERRY)
University Aged Twin Registry
NIPH Twin Panel
Swedish Young Male Twins Study
Twin Research Unit (TRU) at St Thomas’ Hospital London was established in 1992
and is now part of King’s College London. Research focuses on determining the
environmental and genetic factors that cause common conditions such as
osteoarthritis and osteoporosis, obesity, stroke, migraine, cataracts, glaucoma
and back pain. With over 60 publications in the last 2 years alone, the TRU -
with the help of over 10,000 twins - has made a significant contribution to
science and our understanding of what causes common diseases. We hope our
discoveries will further aid the development of future potential therapies for
such diseases. Our achievements have gained considerable press coverage and we
have featured a number of times on BBC1’s City Hospital. The TRU is supported
by The Wellcome Trust, Arthritis Research Campaign, British Heart Foundation,
Chronic Disease Research Foundation, The Guide Dogs for the Blind Association,
and the European Commission.
order to participate in our ongoing research, we ask same-sexed twins
(identical and non-identical twins, male or female, age 16 and older) to
participate in a research visit at St. Thomas’ Hospital London, Monday to
Friday. The visit involves completing questionnaires and taking measurements
such as height, weight, blood pressure, cholesterol and glucose levels. We also
carry out a bone mineral density scan and an eye test and other tests depending
on our research areas at the time. We are able to forward the clinical results to
you and your GP (if agreed) – a great health check our twins tell us! All data
collected and used as part of the study is, of course, anonymous.
who are interested in contributing to research but are unable to come to St
Thomas,’ are still invited to receive our newsletter and complete our
questionnaire which is posted out annually. However, for us to be able to use
the information both twins in a twin pair must agree to participate in the
research. Our newsletter (LINK) summarises our research and findings and also
features a ‘Twins in the News’ section and new publications about twins. We
hope you enjoy it. For further information, please feel free to contact us. We
look forward to hearing from you!
Research & Genetic Epidemiology Unit, King’s College London, St Thomas’
Campus, Lambeth Palace Road, London, SE1 7EH, TEL: 0207 188 5555.
Early Development Study (TEDS)
Region Multiple Pregnancy Register
the Institute of Psychiatry, King's College, London
study of the development of Type 1 Diabetes Mellitus
the Unit of Diabetes, St Bartholomew's Hospital, London
Twin Study of Children with Language, Reading and Communication Problems
the University of Oxford
UNITED STATES OF AMERICA
Worldwide Multiple Birth Support Organizations
is the first support foundation for multiple birth parents. Contact:
of Multiples is a young support organization for multiple birth parents whose
main purposes are: to share scientific information, everyday experiences, and
give support in those moments when it is needed. Contact:
first Association in Italy that specifically refers to families with multiples.
Through the Association's activities, it hopes to help many families by
soliciting institutions, media and firm interests.
language newspaper for parents of twins, triplets and more)
Box 306, East Islip, NY 11730-0306.
+1 631 859 1110 Email: Info@MOSTonline.org Website: www.MOSTonline.org
MOST in an international
non-profit organization and support network for families who have or are
expecting triplets, quadruplets, quintuplets, or more. MOST provides
information, resources, empathy, and good humor during pregnancy, infancy,
toddlerhood, and school age.
Parents of Multiple Births Association (POMBA) Canada)
Web Site offers information regarding multiple births. It includes pregnancy
and post-natal information and, from the point of view of new parents, it
attempts to address some of your questions and concerns.
was established in October 2005, by Jacqui, a divorced mother of twin daughters
(age 7) and a son (9 years). Twintalk~SA is a strictly non-profit organization
which hopes to unite parents of multiples, both nationally and
internationally and provide a base of support, information and assistance.
Founder: Jacqui Thomas, South Africa. Email: email@example.com
is a brand new company dedicated to providing a comprehensive service to families
with twins or more from pregnancy to pre-school. From Twins Tips advice to
exclusive TwinKits™ and the
perfect gifts for two, our extensive range of practical and innovative products
are designed to make life a little easier and more enjoyable!
well-researched articles for parents of multiples on a variety of topics from pregnancy
and discipline to education and family travel. Included are a variety of
printable checklists specifically to help new parents of multiples get
a joyous time, there are sometimes risks in multiple births. Hence this Web
Site also offers bereavement support for parents who have lost one, more or all
of their multiple birth children during pregnancy or in infancy.
you want or need to know about Low Birth Weight prevention with downloadable
information in multiple different languages.
is a relatively new division of MOST. The mission of PreemieCare is to educate,
support and offer additional resources for families of babies born preterm.
Specifically for the year 2004/2005, PreemieCare's focus has been on RSV
awareness and prevention. Issues such as breastfeeding preemies, parenting in
the NICU, early intervention and much more are also addressed by PreemieCare.
Site providing support for families whose babies suffered from Twin to Twin
Transfusion Syndrom (TTTS)
Multiple Birth Bereavement Support
Birth Association Bereavement Support Group (M-BABS)
Simone Zmood, President
Box 105, Coogee NSW 2034, Australia
+61 3 9527 7144
+61 3 9527 2537
Volunteer, non-profit support group -
affiliated with Australian Multiple Birth
Association (AMBA) - by and for bereaved multiple birth families,
caregivers and interested others, suffering loss at any stage of gestation or
age. Quarterly newsletter, "Multiple Dreams". Offers phone contact,
support group meetings, library and resources, and parent contacts in Australia
Multiples Support Network, Multiple Births Canada (MBC)
Lynda P. Haddon
website for address
Toll Free in Canada: (866) 228-8824
Monthly e-newsletter, Forever Angels; Members'
only e-mail connections; support literature; telephone, mail and e-mail
contact;website link to other support organizations; loss column within
Multiple Moments (MBC's national magazine); Adult survivor support;
Education and Bereavement Support
Lynda P. Haddon
Bereavement support for parents,
grandparents, surviving co-multiples and when a multiple birth parent dies.
Quads & Quints Association (TQQ)
Nipiwin Drive, Mississauga, Ontaria, Canada L5N 1X9
Telephone support to bereaved families by
experienced and/or trained parents and referrals to appropriate community
services. No adult survivor support.
Fjendstrupvej 2, DK-4850 Stubbekobing, Denmark
+45 54 49 00 94
Lone twin group for over 18 years old. Mail
support for parents, professional panel to answer parents' questions,
Multiple Birth Loss NZ (Inc.)
Box 51-984, Pakurange, Auckland, New Zealand
Peer support, meetings, phone support,
magazine Hearts & Wings, for anyone at any age with an interest in multiple
birth loss. Some adult survivor support.
Twins and Multiple Births Foundation Inc.
Box 8839, Somolu, Lagos, Nigeria
Twinless twin connection and counselling.
Some social assistance.
Multiple Birth Association
P.O. Box 2484
0861 432 432
Africa Multiple Birth Association offers a support group for grieving parents.
Dexeus Font Foundation
Dr J Ruiz, Dr R Aurell
no. 50, 08017 Barcelona, Spain
+34 93 2274700, ext. 2104
Bereavement support services from conception
onwards as well as psychological support for couples prior to starting IVF
Tvillingklubben (Swedish Twin Society)
106, 11441 Stockholm, Sweden
+46 8 662 1222
Personal meetings in Stockholm, telephone
support. No adult survivor support yet.
Births Foundation (MBF)
Jane Denton or Marion Paterson
4, Hammersmith House, Du Cane Road, London W12 0HS, UK
+43 0208 383 3519
+43 0208 383 3041
Two publications on bereavement: "When a
Twin or Triplet dies" (for parents and twins); MBF Guidelines for
Multiple Births Association (Tamba)/Bereavement Support Group
The Willows,Gardner Road, Guildford, England GU1 4PG
0870 770 3305
freephone helpline 0800 138 0509
Contact with other bereaved families,
quarterly newsletter, parent contact list, quarterly meetings throughout England,
Book of Rememberance, Memorial Service every two years. No adult survivor
The Lone Twin
Box 5653, Birmingham B29 7JY, England
Members receive a confidential list of all
members enabling them to contact each other. Annual Meeting and Newsletter. A
library held by a member. Directory of appropriate therapists and counsellors.
Support or member-led local groups.
UNITED STATES OF AMERICA
Loss in Multiple Birth (CLIMB), Inc.
Box 91377, Anchorage AK 99509, US
+1 907 222 5321 or +1 907 274 7029 (Lisa Fleischer)
Support by and for parents and bereaved
families. Quarterly newsletter. Materials for professionals, parents and
interested others for specific situations. Parent contact network,
regional/local gatherings for bereaved multiple birth parents. Limited adult
Organization of Mothers of Twins Clubs
Organization of Mothers of Twins Clubs, Inc.
Office,2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231
+1 651 248 231 4480
Bereavement support Coordinator who
corresponds with families. No adult survivor support.
Twin Studies Centre,
California State University
Dr Nancy L Segal
Fullerton, 800 N. State College Blvd., Fullerton, VA 92834, US
+1 714 278 2568
Ongoing study of twin loss in childhood,
adolescence and adulthood; referrals for counselling and support groups;
distribution of information on loss of twin;
Janet L Bleyl
Box 99571, Stockton, CA 95209, US
+1 209 474 0885
"Tender Hearts". Networking
information for bereaved higher order multiple families. Referral of adult
Support Group International
Box 980481, Ypsilanti, MI 48198-0481, US
Support for multiples of all ages who have
lost their sibling(s).
and memorial sites
on-line chats, links. Click on 'Multiple Loss'
-Chicago, USA -
support for multiples with special problems and needs
Prenatal education & bereavement support for parents and professionals
*please send additions or corrections to Lynda Haddon or ISTS
International Society for Twin
Page design by K.M. Kirk
Page maintained by ISTS
Last revised: Thursday, 26 February 2009