Links to Related Topics
Please click on the links below:
Council of Multiple Birth Organizations (COMBO)
Twin Registers and Research
Worldwide Multiple Birth Support Organizations
Health Issues
Multiple Birth Bereavement Support
Council
of Multiple Birth Organizations (COMBO)
COMBO is a
working group of the International Society for Twin Studies (ISTS).
Twin Registers and Research
AUSTRALIA
·
Australian Twin ADHD Project
(ATAP)
·
Australian Twin Register
·
Genetic Epidemiology Group of The Queensland Institute of Medical Research,
Australia
·
Western Australian Twin Register
BELGIUM
·
East
Flanders Prospective Twin Survey
e-mail:c.derom@pi.de
CANADA
·
University of British Columbia Twin
Project
CHILE
·
Chilean School-Age Children Twin Registry
CHINA
·
Chinese
National Twin Program (CNTP)
e-mail:cchp@public3.bta.net.cn
·
Guangzhou Twin Registry
DENMARK
·
The Danish Twin Registry
GERMANY
·
Berlin Twin Register
·
German
Observational Study of Adult Twins (GOSAT) and the Bielefeld Longitudinal Study
of Adult Twins (BiLSAT)
e-mail:angleitner@uni-bielefeld.de
FINLAND
·
Finnish Twin Cohort Study
ISRAEL
·
The Longitudinal Israeli Study of Twins
ITALY
·
Italian Twin Register
·
Register
of Italian Twin Athletes (RITA)
e-mail:casini@iusm.it
·
Twin
Register of Rome (TERRY)
e-mail:casini@iusm.it
JAPAN
·
Osaka
University Aged Twin Registry
e-mail:hayakawa@sahs.med.osaka-u.ac.jp
MALAYSIA
·
National Malaysian Twin Registry
e-mail:twinregistry@rcmp.unikl.edu.my
NETHERLANDS
·
Netherlands Twin Register
NORWAY
·
Norway
Twin Registries
e-mail:mina.bergem@psykiatri.uio.no
·
The
NIPH Twin Panel
e-mail:jennifer.harris@folkehelsa.no
SOUTH KOREA
·
Korean Twin Study
·
Seoul Twin Family Study
SPAIN
·
The Murcia Twin Registry
SRI LANKA
·
National Twin Registry
of Sri Lanka
·
National Twin Registry of Sri Lanka_2
SWEDEN
·
The Swedish Twin
Registry
·
The
Swedish Young Male Twins Study
e-mail:Finn.rasmussen@ki.se
UNITED KINGDOM
·
St Thomas' Twin Research Unit
The
Twin Research Unit (TRU) at St Thomas’ Hospital London was established in 1992
and is now part of King’s College London. Research focuses on determining the
environmental and genetic factors that cause common conditions such as
osteoarthritis and osteoporosis, obesity, stroke, migraine, cataracts, glaucoma
and back pain. With over 60 publications in the last 2 years alone, the TRU -
with the help of over 10,000 twins - has made a significant contribution to
science and our understanding of what causes common diseases. We hope our
discoveries will further aid the development of future potential therapies for
such diseases. Our achievements have gained considerable press coverage and we
have featured a number of times on BBC1’s City Hospital. The TRU is supported
by The Wellcome Trust, Arthritis Research Campaign, British Heart Foundation,
Chronic Disease Research Foundation, The Guide Dogs for the Blind Association,
and the European Commission.
In
order to participate in our ongoing research, we ask same-sexed twins
(identical and non-identical twins, male or female, age 16 and older) to
participate in a research visit at St. Thomas’ Hospital London, Monday to
Friday. The visit involves completing questionnaires and taking measurements
such as height, weight, blood pressure, cholesterol and glucose levels. We also
carry out a bone mineral density scan and an eye test and other tests depending
on our research areas at the time. We are able to forward the clinical results to
you and your GP (if agreed) – a great health check our twins tell us! All data
collected and used as part of the study is, of course, anonymous.
Twins
who are interested in contributing to research but are unable to come to St
Thomas,’ are still invited to receive our newsletter and complete our
questionnaire which is posted out annually. However, for us to be able to use
the information both twins in a twin pair must agree to participate in the
research. Our newsletter (LINK) summarises our research and findings and also
features a ‘Twins in the News’ section and new publications about twins. We
hope you enjoy it. For further information, please feel free to contact us. We
look forward to hearing from you!
Twin
Research & Genetic Epidemiology Unit, King’s College London, St Thomas’
Campus, Lambeth Palace Road, London, SE1 7EH, TEL: 0207 188 5555.
e-mail:twinrecruitment@gstt.nhs.uk
Newsletter Autumn 2006.
·
Twins'
Early Development Study (TEDS)
e-mail:a.trouton@iop.kcl.ac.uk
·
Northern
Region Multiple Pregnancy Register
e-mail:Christopher.Wright@ncl.ac.uk
·
Twin
study of bipolar disorder
at
the Institute of Psychiatry, King's College, London
e-mail:a.trouton@iop.kcl.ac.uk
·
Twin
study of the development of Type 1 Diabetes Mellitus
at
the Unit of Diabetes, St Bartholomew's Hospital, London
e-mail:
Ms Jarka Valasheek
UNITED STATES OF AMERICA
·
California Twin Program
·
Colorado Twin Registry
·
Fullerton Virtual Twin Study
·
Georgia Cardiovascular Twin Study
·
International
Twin Study
e-mail:tmack@usc.edu
·
Michigan State University Twin Registry
(MSUTR)
·
Mid-Atlantic Twin Registry
·
Minnesota Twin Family Study (MTFS)
·
Minnesota Twin Registry
·
National Academy of Sciences-National Research
Council (NAS-NRC) Twin Registry
·
NAS-NRC Twin Registry
·
The National Longitudinal Study of
Adolescent Health (Add Health)
·
NY
Obesity Research Center Child Twin Registry (Project "Grow-2-Gether")
·
Pittsburgh Registry of Infant
Multiplets
·
San Diego twin blood pressure study
at UCSD
·
Southern California Twin Register
·
Southern Illinois Twins
·
University of Washington Twin Registry
·
Vietnam Era Twin (VET)
Registry
e-mail:
VETR@va.gov
·
Wisconsin Twin Project
Worldwide Multiple Birth Support Organizations
·
Argentina - Multifamilias
Multifamilias
is the first support foundation for multiple birth parents. Contact:
master@multifamilias.org.ar
·
Argentina - Padres Múltiples
Parents
of Multiples is a young support organization for multiple birth parents whose
main purposes are: to share scientific information, everyday experiences, and
give support in those moments when it is needed. Contact:
informes@padresmultiples.com.ar
Australian Multiple Birth
Association
·
Center for Study of
Multiple Birth
·
Council
for Multiple Birth Organizations COMBO News November
2006.
Czechoslovakia Multiple Birth
Group
The Finnish Society
for Families of Multiples
(in
Finnish)
·
Hungarian Multiple Births
Contact
info: gazso@ikresek.hu
·
Italian Parents of Twins and Multiples
Association - Il Mondo dei Gemelli
The
first Association in Italy that specifically refers to families with multiples.
Through the Association's activities, it hopes to help many families by
soliciting institutions, media and firm interests.
·
Jumeaux Infos
(French
language newspaper for parents of twins, triplets and more)
·
MOST (Mothers of
Supertwins), Inc.
PO
Box 306, East Islip, NY 11730-0306.
Telephone:
+1 631 859 1110 Email: Info@MOSTonline.org Website: www.MOSTonline.org
MOST in an international
non-profit organization and support network for families who have or are
expecting triplets, quadruplets, quintuplets, or more. MOST provides
information, resources, empathy, and good humor during pregnancy, infancy,
toddlerhood, and school age.
Multiple Births
Canada / Naissances Multiples Canada
(previously
Parents of Multiple Births Association (POMBA) Canada)
·
Multiple Births
Foundation
Multiple
Births: Prenatal Education and Bereavement Support
This
Web Site offers information regarding multiple births. It includes pregnancy
and post-natal information and, from the point of view of new parents, it
attempts to address some of your questions and concerns.
South Africa
Multiple Birth Association
Twintalk~SA
Twintalk~SA
was established in October 2005, by Jacqui, a divorced mother of twin daughters
(age 7) and a son (9 years). Twintalk~SA is a strictly non-profit organization
which hopes to unite parents of multiples, both nationally and
internationally and provide a base of support, information and assistance.
Founder: Jacqui Thomas, South Africa. Email: jacqui_t@absamail.co.za
Twin Hope
The Twins Foundation
Twins magazine
Twins Network
TwinsUK
TwinsUK
is a brand new company dedicated to providing a comprehensive service to families
with twins or more from pregnancy to pre-school. From Twins Tips advice to
exclusive TwinKits™ and the
perfect gifts for two, our extensive range of practical and innovative products
are designed to make life a little easier and more enjoyable!
Talk about Twins
In-depth,
well-researched articles for parents of multiples on a variety of topics from pregnancy
and discipline to education and family travel. Included are a variety of
printable checklists specifically to help new parents of multiples get
organized.
Although
a joyous time, there are sometimes risks in multiple births. Hence this Web
Site also offers bereavement support for parents who have lost one, more or all
of their multiple birth children during pregnancy or in infancy.
Health Issues
Low Birth Weight - Ottawa
Coalition for the Prevention of Low Birth Weight
Everything
you want or need to know about Low Birth Weight prevention with downloadable
information in multiple different languages.
·
Premature and Preterm
Babies
·
More on Premature and Preterm Babies
·
PreemieCare
PreemieCare
is a relatively new division of MOST. The mission of PreemieCare is to educate,
support and offer additional resources for families of babies born preterm.
Specifically for the year 2004/2005, PreemieCare's focus has been on RSV
awareness and prevention. Issues such as breastfeeding preemies, parenting in
the NICU, early intervention and much more are also addressed by PreemieCare.
·
Conjoined Twins
·
Twin to Twin Transfusion Syndrome (UK)
-United
Kingdom Site
·
Twin to Twin Transfusion Syndrome (Australia)
-Australian
Site providing support for families whose babies suffered from Twin to Twin
Transfusion Syndrom (TTTS)
Multiple Birth Bereavement Support
AUSTRALIA
Multiple
Birth Association Bereavement Support Group (M-BABS)
Contact:
Simone Zmood, President
PO
Box 105, Coogee NSW 2034, Australia
Telephone:
+61 3 9527 7144
Fax:
+61 3 9527 2537
Email:
bereavement@amba.org.au
Website:
www.amba.org.au/bereavement
Volunteer, non-profit support group -
affiliated with Australian Multiple Birth
Association (AMBA) - by and for bereaved multiple birth families,
caregivers and interested others, suffering loss at any stage of gestation or
age. Quarterly newsletter, "Multiple Dreams". Offers phone contact,
support group meetings, library and resources, and parent contacts in Australia
and worldwide.
CANADA
Loss of
Multiples Support Network, Multiple Births Canada (MBC)
Contact:
Lynda P. Haddon
check
website for address
Telephone:
Toll Free in Canada: (866) 228-8824
Email:
loss@multiplebirthscanada.org
Website:
www.multiplebirthscanada.org
Monthly e-newsletter, Forever Angels; Members'
only e-mail connections; support literature; telephone, mail and e-mail
contact;website link to other support organizations; loss column within
Multiple Moments (MBC's national magazine); Adult survivor support;
Prenatal
Education and Bereavement Support
Contact:
Lynda P. Haddon
Multiple
Birth Educator
Website:
www.multiplebirthsfamilies.com
Bereavement support for parents,
grandparents, surviving co-multiples and when a multiple birth parent dies.
Triplets,
Quads & Quints Association (TQQ)
Contact:
Diane Myers
2968
Nipiwin Drive, Mississauga, Ontaria, Canada L5N 1X9
Telephone:
(905) 826-0734
Email:
diane@tqq.com
Website:
www.tqq.com
Telephone support to bereaved families by
experienced and/or trained parents and referrals to appropriate community
services. No adult survivor support.